Sunday, March 6, 2011

Emailing.

I've been looking around for how to convince the FDA to put Darvocet back on the market and came across a few email addresses:

Ralph Nader is a big-shot attorney who was taking Darvocet before they took it off the market, so he understands the issue and could possibly have some pull in getting the FDA to undo their withdrawal.
info@nader.org

Public Citizen is a "consumer advocacy organization".  They're the ones who fought to take Darvocet and Darvon off the market.
hrg1@citizen.org

The FDA is obviously who's ultimately in charge.  I have two addresses for them.
druginfo@fda.hhs.gov
oshi@fda.hhs.gov

I would really appreciate it if you would take a few minutes to email these people.  If you'd like to simply copy and paste the emails I've been sending, that would be okay too.  Just let me know, and I'll send them to you.  The more emails these people get, the more likely they'll listen. 

Tuesday, March 1, 2011

Bad news.

Bad news number 1:  The only medication I've ever found that helps my migraine pain nearly every time I take it is Darvocet.  In case you haven't hear, it was recently taken off the market.  Thank you, FDA. 

Bad news number 2:  I talked to my pain management doctor about the situation, and he prescribed Vicodin.  I didn't realize until I got home that Vicodin has hydrocodone in it.  I'm allergic.  So then I asked my neurologist for something.  She gave me Thorazine, which made me so sleepy I start slurring my words after a few minutes and then sleep for fifteen hours.  Next try she gave me Talwin.  When I took it I was so dizzy I couldn't even sit up.  So, of course, I tried again.  It took over a week to get in touch with my neurologist.  I left several messages and never heard back.  When I finally did get to talk with the nurse, her message was "The doctor says there's nothing else she can do for you."  Seriously?  Thank you, neurologist.

A little good news...  My mom did a whole lot of Internet searching after they took away Darvocet and found that lots of people who took Darvocet found Ultracet to be almost as effective.  I got the super nice neurologist (whom I've canceled any further appointments with, might I add) to call me in a prescription, and it's actually worked some.  It's not Darvocet, but it's better than nothing.